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Life-Limiting Illnesses in the Workplace

When faced with the prospect of our own death, or the death of someone we are caring for, many people find it difficult to articulate their needs, wishes and concerns. This can be particularly challenging in the workplace.

To support workplaces and employees navigating these situations, Palliative Care Tasmania, with support from Palliative Care ACT, developed two practical toolkits addressing life-limiting illness in the workplace.

These resources aim to help organisations foster understanding, compassion and practical support when employees are living with, or caring for someone with, a life-limiting illness.

Managers and HR Professionals

Research, including the Grattan Institute’s Dying Well report, shows that many Australians are uncomfortable talking about death and dying. This can make conversations about terminal illness particularly difficult in workplace settings.

At the same time, Australia’s ageing population means the number of deaths is expected to double over the next 25 years. As a result, more workplaces will have employees who are either living with a life-limiting illness or caring for someone who is.

This toolkit is designed to help managers and HR professionals start conversations, develop supportive policies, and create workplace cultures that respond with compassion and practical support during end-of-life situations.

Employees

This toolkit has been written specifically for employees who have received a terminal diagnosis (referred to as a life-limiting illness). It may also be helpful for employees who are caring for someone with such a diagnosis.

The guide provides practical advice on decision-making, planning, navigating workplace conversations, and accessing support and information.

Our hope is that it helps you feel better prepared, supported, and informed during a very difficult time.