Self Care

Sharing the end-of-life journey with someone who matters to you is at once a privilege and a challenge. It offers the opportunity for closeness, intimacy and working together to prioritise what matters most to you both.

Looking after yourself

Looking after your physical, mental and spiritual health is not selfish – it’s necessary. Many people receiving care feel reassured knowing their carers also have time to rest and recharge. If you’re struggling emotionally or physically, consider speaking with your doctor or a healthcare professional. They can connect you with counselling services, mental health support (such as a Medicare Mental Health Plan) and other resources.

Asking for help and accepting it

Caring for someone at home can be meaningful, and it can also be physically and emotionally demanding for everyone involved. It helps to recognise what feels manageable and to ask for support ahead of things becoming too much. There may be a point where the level of care needed is more than what you can manage on your own. When that happens, extra help at home or care outside of the home can make the situation safer and more comfortable. Skilled professionals can take on the physical care so everyone else can have more space for connection, comfort and support.

There are many services that provide in-home help, including specialist palliative care. A visiting nurse can offer guidance and reassurance, and coordinate support from other health and allied professionals. Your GP can help you understand the options and link you with the right services at the right time.

What you need will change over time. Keep talking openly and update any instructions shared with family, friends or the care team as they occur. Here are some ways to get the support you need:

• Make a list of tasks, and ask family or friends to help with specific ones.
• Set up a care roster if multiple people are involved in caregiving.
• Ask someone to stay overnight to give you time to rest.
• Look for local services or volunteer programs that offer support.
• You can find more information about palliative care volunteering services at the end of this booklet.